A Young Mother’s response to Her Child’s Brain Tumor

A Young Mother’s response to Her Child’s Brain Tumor

UFI_Image_2014_01_28Nearly two years ago, Micah and Katy Lillrose’s 18-month-old son stopped walking, and, after an MRI, was whisked off to emergency surgery to remove a tumor that was compressing his spinal cord. Within a week, little Emmett was then diagnosed with a very rare and aggressive brain tumor.

 This life-altering event for the Lillrose family led them to return to Katy’s hometown in Boston, where a local medical institute could provide Emmett his best chance at life. Katy describes how being in the home where she grew up has strengthened her in trying circumstances.

 Katy says, “There are many hard things right now and many things I don’t want to do. But I try not to complain. I try not to worry. I roll up my sleeves as we spend night after night in the hospital and long days in the clinic, deal with good news and bad news, and make many life-altering choices based on little to no data. We consult with the doctors, make the best decision we can, and move forward. Instead of worrying about what might happen six months from now, we have learned to enjoy the small things day to day, like Emmett learning new words or learning to walk again or taking a bite of food. We find great joy in these small victories and take lots of pictures of him. My mom’s strength has served as an example to me to work hard and do what’s in my control, then enjoy life with a positive attitude and not focus on the elements over which I have no control.”

Today’s post and image are contributed by Seeing the Everyday magazine. Read more about Katy’s experience in her article, “Steadiness,” in Seeing the Everyday No. 20, pp. 80-83. For more information, go to seeingtheeveryday.com

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